Saturday, January 28, 2012
Dravet syndrome
I love blogspot! I have found such useful information and so many amazing life stories from real people. Here is a very close and personal story of an amazing family I know who's little boy is battling Dravet Syndrome. For some reason I felt compelled to put this on here as a possible link for someone who may have to google dravet syndrome and needed to find support from someone who has been through it!
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What a BEAUTIFUL family! My heart aches for them. I will keep them in my thoughts and prayers and hope for peace for them and a cure!
ReplyDeleteI kept meaning to tell you that I watched both videos....My little sister's best friend has the same heart condition as the teen in the other video, so I didn't want to post anything on fb and scare her.